All stakeholders can benefit from decentralized networks

Patients
Pharmas Med Techs
Providers
Payers
Patients

Consolidated medical data for better treatment
Benefits economically from the sale of his de-identified medical information

Have full control over data and trustworthy use of their medical history

Pharmas Med Techs

Irrefutable patient consent

Have access to unparalleled quality & depths of longitudinal medicalized patient data for clinical studies, health economics and outcomes research

Immutability of data lets clinicians prove that studies are not manipulated

Providers

Have a holistic and immediative view of the patient’s condition and medical event across care centers

Save time vs. re-constructing manually a patient’s medical history

Benefit economically from his activity in improving data quality

Payers

Understand pathways to keep patients « in-network »

Have a secure, tamper-proof IT solution of essential information

Ability to incentivize patients for medical compliance in value-based care

Trustworthy source of data for reimbursement

Consolidated medical data for better treatment
Benefits economically from the sale of his de-identified medical information

Have full control over data and trustworthy use of their medical history

Irrefutable patient consent

Have access to unparalleled quality & depths of longitudinal medicalized patient data for clinical studies, health economics and outcomes research

Immutability of data lets clinicians prove that studies are not manipulated

Have a holistic and immediative view of the patient’s condition and medical event across care centers

Save time vs. re-constructing manually a patient’s medical history

Benefit economically from his activity in improving data quality

Understand pathways to keep patients « in-network »

Have a secure, tamper-proof IT solution of essential information

Ability to incentivize patients for medical compliance in value-based care

Trustworthy source of data for reimbursement

How it works

Our Partners Network

Patient communities support owning their health data

Watch this video from our Cystic Fibrosis Community Partners about how data exchanges can empower patients

Dr. John Halamka talks about how Blockchain can fix some of the problems of healthcare IT

“To have one trustworthy place to look for all your health data, that’s a great problem to solve”
Pr. John D. Halamka, MD

Chief Information Officer at Beth Israel Deaconess Medical Center, International Healthcare Innovation Professor at Harvard Medical School and advisor at Embleema

Stories

  • Olivier Laureau
    President, Servier Groupe
    Un volume considérable de données de santé est généré chaque jour, y compris par les patients via, notamment, les objets connectés.  Ces données constituent une source de connaissance inestimable pour accélérer la découverte de nouvelles solutions thérapeutiques.     Dans ce contexte, la blockchain apparaît comme une technologie clé pour faire émerger un modèle plus collaboratif entre les professionnels de santé et les patients.     C’est pourquoi nous sommes enthousiastes de contribuer, au sein du Consortium Blockchain Santé d'Embleema, à la construction de ce nouveau modèle qui reflète l’engagement du Groupe de placer les patients au cœur de toutes ses activités.
  • Frederic Duchesne, Pharm.D.
    CEO of Pierre Fabre Pharmaceuticals
    Pourquoi Pierre Fabre a rejoint le consortium Embleema  "’Lémergence de la santé numérique oblige les acteurs des sciences de la vie à faire évoluer le processus d’approbation des médicaments. Il est temps de passer à un modèle itératif dans lequel les données de santé numériques sont partagées en temps réel entre les patients, les acteurs des sciences de la vie et les régulateurs de santé. Cela signifie tirer le meilleur des nouvelles technologies pour sécuriser l'adhésion des patients, l'intégrité des données et leur transmission aux différents acteurs des communautés médicales et scientifiques. La Blockchain est une technologie clé pour y parvenir et nous avons choisi Embleema car sa technologie est la plus avancée.
Coming soon

Developer portal

Embleema publishes open source code for HIPAA compliant organizations to add nodes to the healthcare blockchain.

Join the Consortium

Manifesto

In 1951, Henrietta Lacks was admitted at John Hopkins hospital for cervical cancer. Her cells were extracted from her tumour and cultured. They became the HeLa immortal cell line, a source of invaluable medical data to present day, used to develop the first Polio Vaccine, cell cloning and to study HIV. Despite this outstanding contribution to research, Henrietta never gave her consent. She died in poverty with no compensation or acknowledgement until present day.

We believe we have the right as patients to choose how our data is used for the common good. As digital health becomes the norm, this means changing the very organization of the Internet to reclaim control.

Decentralization as Freedom

The promise of the Internet has been broken. Decentralization of information was meant to promote ​free speech, democratize ​knowledge, abolish censorship, expand services remotely… But the Internet is now centralized by a handful of platforms. They monetize our data as their own asset to make us better consumers, not more enlightened or healthier citizens at the expense of working and innovating for the common good. Our data is nothing less than our digital assets in the virtual world and the same way we own and are free to dispose of our assets in the real-world, we should own and dispose of our digital assets.

Our healthcare data is our most valuable digital asset: it can save our life in an emergency situation and provides critical decision-making information for the providers to offer us the best care. However, our records are held captive in protected silos for fear of being singled out, for fear of seeing our right to care violated. A wealth of digital data is lost to personalized medicine.

Power to the Patients

We want to become the steward of our health data, not having to rely on third parties to handle our most sensitive information. We have the right to break information silos, control where our data is stored, who has access to it, who we share it with. This power can dramatically affect how treatments are delivered, moving away from a top-down approach to an iterative process where we, patients, measure the effectiveness of more personalized treatments. This is a paradigm for medical research and change lives.

In nodes we trust

As third parties centralize our confidential data, unauthorized access becomes the norm. We, as patients, are kept out of the loop even in case of breaches. Decentralized ledgers let us enforce the security over our digital health assets, making tampering impossible, keeping track of violations in real-time, without no third party involved. Imagine we could still control our data even once it has been shared, removing access to enforce our privacy at any time.

We believe in reclaiming our data with decentralized networks, to put patients at the center of care.

Your Health Data, Your Property

Hospitals or pharmacies monetize our health data to pharmaceutical and insurance companies for marketing or pharmacovigilance studies. Even though there are strong benefits for using our data, we are not taking part in the sale of our own data. Blockchain will let us enforce our property. Smart contracts will let us set the terms by which others access our digital assets. Instead of being robbed of our data, we will willingly get involved and be compensated for our contribution to the development of innovative treatments.

Holding Blockchain to the Highest Standards

Blockchain as a trust-generating technology is game-changing, destined to become the standard in industries that need trustworthy information without rent-seeking third parties. But its potential is shrouded by a wave of crypto-speculation that make the most solid projects look suspicious. To restore trust and allow news rights to come of age, we deliver real products with clear benefits, demonstrate financial transparency, and share our expertise to the healthcare ecosystem. We are working with regulators, health authorities, pharmaceutical companies, patient advocacy groups, care networks and providers to ensure patients, caregivers and researchers can reliably endorse the next generation of healthcare data.

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