Politique de confidentialité

Denière mise à jour: 11 Juillet 2018

La protection de vos données privées est notre prioritié. Cette notice sur notre politique de confidentialité a pour objectif de vous informer sur le type d’information que nous collectons, pourquoi ces données sont collectées et à quelles fins. Le service Embleema (“Service”) est opéré par Embleema Inc., une entreprise immatriculée dans le Delaware. Nous opérons le domaine www.embleema.com ainsi que le site web patienttruth.embleema.com (collectivement le “site”). Votre utilisation du site est soumis à la politique de confidentialité décrite ici. Merci de bien vouloir lire cette politique de confidentialité attentivement. En accédant à ce site, en le pourcourant ou en utilisant les services Embleema, vous reconnaissez avoir pris connaissance, compris et adhéré à sa politique de confidentialité. Si vous n’acceptez pas les conditions de cette politique de confidentialité, vous ne devriez pas accéder au site ou le parcourir. Cette page vous informe sur notre politique en matière de collecte et d’usage des informations personnelles liés à l’utilisation du service.

Vos informations personnelles ne seront partagées avec personnes, sauf dans les cas décrit dans cette politique de confidentialité..

Nous utilisons vos informations personnelles pour vous proposer le service et l’améliorer. En utilisant le service, vous consentez à la collecte et à l’usage de vos informations personnelles en conformité avec cette politique. Sauf si cela fait l’objet d’une indication spécifique, les termes employés dans la politique de confidentialité sont les même que dans les termes et conditions d’usage, accessible sur notre site.

Clicquer ici pour accéder à la politique de confidentialité (en Anglais)

Addendum RGPD sur le traitement de données

Dernière mise à jour: 11 Juillet 2018

Cliquer ici pour y accéder (en Anglais)

Standard de Sécurité Embleema

Dernière mise à jour: 11 Juillet 2018

Cliquer ici pour y accéder

Contactez nous

Si vous avez des questions, contactez-nous, ici.


In 1951, Henrietta Lacks was admitted at John Hopkins hospital for cervical cancer. Her cells were extracted from her tumour and cultured. They became the HeLa immortal cell line, a source of invaluable medical data to present day, used to develop the first Polio Vaccine, cell cloning and to study HIV. Despite this outstanding contribution to research, Henrietta never gave her consent. She died in poverty with no compensation or acknowledgement until present day.

We believe we have the right as patients to choose how our data is used for the common good. As digital health becomes the norm, this means changing the very organization of the Internet to reclaim control.

Decentralization as Freedom

The promise of the Internet has been broken. Decentralization of information was meant to promote ​free speech, democratize ​knowledge, abolish censorship, expand services remotely… But the Internet is now centralized by a handful of platforms. They monetize our data as their own asset to make us better consumers, not more enlightened or healthier citizens at the expense of working and innovating for the common good. Our data is nothing less than our digital assets in the virtual world and the same way we own and are free to dispose of our assets in the real-world, we should own and dispose of our digital assets.

Our healthcare data is our most valuable digital asset: it can save our life in an emergency situation and provides critical decision-making information for the providers to offer us the best care. However, our records are held captive in protected silos for fear of being singled out, for fear of seeing our right to care violated. A wealth of digital data is lost to personalized medicine.

Power to the Patients

We want to become the steward of our health data, not having to rely on third parties to handle our most sensitive information. We have the right to break information silos, control where our data is stored, who has access to it, who we share it with. This power can dramatically affect how treatments are delivered, moving away from a top-down approach to an iterative process where we, patients, measure the effectiveness of more personalized treatments. This is a paradigm for medical research and change lives.

In nodes we trust

As third parties centralize our confidential data, unauthorized access becomes the norm. We, as patients, are kept out of the loop even in case of breaches. Decentralized ledgers let us enforce the security over our digital health assets, making tampering impossible, keeping track of violations in real-time, without no third party involved. Imagine we could still control our data even once it has been shared, removing access to enforce our privacy at any time.

We believe in reclaiming our data with decentralized networks, to put patients at the center of care.

Your Health Data, Your Property

Hospitals or pharmacies monetize our health data to pharmaceutical and insurance companies for marketing or pharmacovigilance studies. Even though there are strong benefits for using our data, we are not taking part in the sale of our own data. Blockchain will let us enforce our property. Smart contracts will let us set the terms by which others access our digital assets. Instead of being robbed of our data, we will willingly get involved and be compensated for our contribution to the development of innovative treatments.

Holding Blockchain to the Highest Standards

Blockchain as a trust-generating technology is game-changing, destined to become the standard in industries that need trustworthy information without rent-seeking third parties. But its potential is shrouded by a wave of crypto-speculation that make the most solid projects look suspicious. To restore trust and allow news rights to come of age, we deliver real products with clear benefits, demonstrate financial transparency, and share our expertise to the healthcare ecosystem. We are working with regulators, health authorities, pharmaceutical companies, patient advocacy groups, care networks and providers to ensure patients, caregivers and researchers can reliably endorse the next generation of healthcare data.

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