Privacy Policy

Last updated: July 11th, 2018


Protecting your privacy is very important to us. We’re telling you about our privacy policy and notice so you know what information we collect, why we collect it, and what we do with it. The Embleema Service (“Service”) is owned and operated by Embleema Inc. (“Embleema”, “us”, “we”, or “our”), a Delaware corporation. We operate the www.embleema.com as well as the patienttruth.embleema.com website (collectively the “Website”). Your use of the Website and Service is governed by the privacy policy and notifications contained herein together (the ” Privacy Policy”, “Policy”). Please read this Privacy Policy carefully. By accessing, browsing or otherwise using the Website or any Embleema Service, you acknowledge that you have read, understood, and agree that you have been so notified of this Privacy Policy. If you do not accept the terms and conditions of this Privacy Policy, you should not access, browse or use the Website. This page informs you of our policies regarding the collection, use and disclosure of Personal Information when you use our Service.

We will not use or share your information with anyone except as described in this Privacy Policy.

We use your Personal Information for providing and improving the Service. By using the Service, you agree to the collection and use of information in accordance with this policy. Unless otherwise defined in this Privacy Policy, terms used in this Privacy Policy have the same meanings as in our Terms and Conditions, accessible at our Website.


Click here to access our Privacy policy

GDPR Data Processing Addendum

Last updated: July 11th, 2018

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Embleema Security Standards

Last updated: July 11th, 2018

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Contact Us

If you have any questions, please contact us.

Manifesto

In 1951, Henrietta Lacks was admitted at John Hopkins hospital for cervical cancer. Her cells were extracted from her tumour and cultured. They became the HeLa immortal cell line, a source of invaluable medical data to present day, used to develop the first Polio Vaccine, cell cloning and to study HIV. Despite this outstanding contribution to research, Henrietta never gave her consent. She died in poverty with no compensation or acknowledgement until present day.

We believe we have the right as patients to choose how our data is used for the common good. As digital health becomes the norm, this means changing the very organization of the Internet to reclaim control.

Decentralization as Freedom

The promise of the Internet has been broken. Decentralization of information was meant to promote ​free speech, democratize ​knowledge, abolish censorship, expand services remotely… But the Internet is now centralized by a handful of platforms. They monetize our data as their own asset to make us better consumers, not more enlightened or healthier citizens at the expense of working and innovating for the common good. Our data is nothing less than our digital assets in the virtual world and the same way we own and are free to dispose of our assets in the real-world, we should own and dispose of our digital assets.

Our healthcare data is our most valuable digital asset: it can save our life in an emergency situation and provides critical decision-making information for the providers to offer us the best care. However, our records are held captive in protected silos for fear of being singled out, for fear of seeing our right to care violated. A wealth of digital data is lost to personalized medicine.

Power to the Patients

We want to become the steward of our health data, not having to rely on third parties to handle our most sensitive information. We have the right to break information silos, control where our data is stored, who has access to it, who we share it with. This power can dramatically affect how treatments are delivered, moving away from a top-down approach to an iterative process where we, patients, measure the effectiveness of more personalized treatments. This is a paradigm for medical research and change lives.

In nodes we trust

As third parties centralize our confidential data, unauthorized access becomes the norm. We, as patients, are kept out of the loop even in case of breaches. Decentralized ledgers let us enforce the security over our digital health assets, making tampering impossible, keeping track of violations in real-time, without no third party involved. Imagine we could still control our data even once it has been shared, removing access to enforce our privacy at any time.

We believe in reclaiming our data with decentralized networks, to put patients at the center of care.

Your Health Data, Your Property

Hospitals or pharmacies monetize our health data to pharmaceutical and insurance companies for marketing or pharmacovigilance studies. Even though there are strong benefits for using our data, we are not taking part in the sale of our own data. Blockchain will let us enforce our property. Smart contracts will let us set the terms by which others access our digital assets. Instead of being robbed of our data, we will willingly get involved and be compensated for our contribution to the development of innovative treatments.

Holding Blockchain to the Highest Standards

Blockchain as a trust-generating technology is game-changing, destined to become the standard in industries that need trustworthy information without rent-seeking third parties. But its potential is shrouded by a wave of crypto-speculation that make the most solid projects look suspicious. To restore trust and allow news rights to come of age, we deliver real products with clear benefits, demonstrate financial transparency, and share our expertise to the healthcare ecosystem. We are working with regulators, health authorities, pharmaceutical companies, patient advocacy groups, care networks and providers to ensure patients, caregivers and researchers can reliably endorse the next generation of healthcare data.

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