Manage your epilepsy while contributing to research
By joining the Battling Epilepsy Together (BET) program, you’ll gain access to a powerful app designed to help you manage your epilepsy more effectively. Track your seizures, medications, and symptoms with ease, while also contributing to important epilepsy research.
For patients with focal epilepsy, there may be opportunities to be matched with clinical trials that offer potential new treatment options.
Easily log seizures, symptoms, and medications
Track you seizures, monitor your health information, and share updates with your healthcare team. With a few taps, you can log everything that matters—your seizures, medications, symptoms, and more.
Contribute to epilepsy research and explore clinical trial opportunities
By joining the Battling Epilepsy Together (BET) program, your survey responses help researchers gain valuable insights into epilepsy treatment.
If you have focal epilepsy, you may also be matched with relevant clinical trials, all while remaining in full control of your data with the option to withdraw at any time.
Stay in control of your health data
You own your data. With complete control, you decide what to share with your doctors and researchers. Our platform is secure and built with privacy in mind, ensuring your data stays safe.
Full ownership of your health data
Secure, encrypted platform on the blockchain
Easy sharing with your healthcare team
What is the Battling Epilepsy Together (BET) Program?
Advancing Epilepsy Research Through Decentralized Data
The Battling Epilepsy Together (BET) program, powered by Embleema, is revolutionizing epilepsy care with a patient-first digital ecosystem. Launched in 2022, this decentralized registry collects real-world data from diverse epilepsy patients, including those in remote areas, providing insights into disease management, medications, and patient responses.
Patients and caregivers maintain full control of their data while contributing to research and accessing personalized tools like S-Check and seizure diaries. With consent, data is shared across stakeholders, breaking down silos and advancing personalized epilepsy treatment.
How You Benefit
BET enables you to you manage your condition while contributing to epilepsy research. Every seizure logged, survey answered, and symptom tracked helps researchers advance their understanding and develop new therapies.
Quick Seizure Logging
Use our system to track seizures in under a minute, with prompts tailored to your personal seizure patterns.
Streamlined Healthcare Communication
Share a health report with your healthcare provider, ensuring better informed appointments.
Contribute to Research & Get Matched to Trials
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Tap the button below to create your account with Embleema
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Enter your information and provide some basic details to set up your login
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Verify your account by clicking the link sent to your email
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Download and dive into the Embleema app, log in, and start your journey with BET
What patients are saying
“The text reminders to track my seizures has been a lifesaver! It takes less than 30 seconds and is so simple and easy. Being able to go back and see how often I have been tracking my seizures will be so helpful when talking to my doctor.”
Renata
47, Chicago, IL
About the study team
Embleema, a New York-based healthcare technology company, has partnered with the Epilepsy Foundation to launch BET, a platform that consolidates patient health data, enables secure sharing with caregivers and researchers, and offers personalized insights for improved condition management. Embleema’s platform, trusted by the FDA, NIH, top U.S. health networks, and leading organizations, continues its commitment to empowering the epilepsy community.
For over 50 years, the Epilepsy Foundation has promoted epilepsy awareness, advocated for supportive laws, and funded research. Their mission is to enhance the lives of those affected by epilepsy through education, advocacy, research, and connection. Together with nearly 50 partners, they have connected people to treatment and resources, funded innovative research and specialist training, and educated the public on epilepsy and seizure first aid.